Sharing behavioral data through a grid infrastructure using data standards
Identifieur interne : 000289 ( Main/Exploration ); précédent : 000288; suivant : 000290Sharing behavioral data through a grid infrastructure using data standards
Auteurs : Hua Min [États-Unis] ; Riki Ohira [États-Unis] ; Michael A. Collins [États-Unis] ; Jessica Bondy [États-Unis] ; Nancy E. Avis [États-Unis] ; Olga Tchuvatkina [États-Unis] ; Paul K. Courtney [États-Unis] ; Richard P. Moser [États-Unis] ; Abdul R. Shaikh [États-Unis] ; Bradford W. Hesse [États-Unis] ; Mary Cooper [États-Unis] ; Dianne Reeves [États-Unis] ; Bob Lanese [États-Unis] ; Cindy Helba [États-Unis] ; Suzanne M. Miller [États-Unis] ; Eric A. Ross [États-Unis]Source :
- Journal of the American Medical Informatics Association : JAMIA [ 1067-5027 ] ; 2013.
Abstract
In an effort to standardize behavioral measures and their data representation, the present study develops a methodology for incorporating measures found in the National Cancer Institute's (NCI) grid-enabled measures (GEM) portal, a repository for behavioral and social measures, into the cancer data standards registry and repository (caDSR).
The methodology consists of four parts for curating GEM measures into the caDSR: (1) develop unified modeling language (UML) models for behavioral measures; (2) create common data elements (CDE) for UML components; (3) bind CDE with concepts from the NCI thesaurus; and (4) register CDE in the caDSR.
UML models have been developed for four GEM measures, which have been registered in the caDSR as CDE. New behavioral concepts related to these measures have been created and incorporated into the NCI thesaurus. Best practices for representing measures using UML models have been utilized in the practice (eg, caDSR). One dataset based on a GEM-curated measure is available for use by other systems and users connected to the grid.
Behavioral and population science data can be standardized by using and extending current standards. A new branch of CDE for behavioral science was developed for the caDSR. It expands the caDSR domain coverage beyond the clinical and biological areas. In addition, missing terms and concepts specific to the behavioral measures addressed in this paper were added to the NCI thesaurus. A methodology was developed and refined for curation of behavioral and population science data.
Url:
DOI: 10.1136/amiajnl-2013-001763
PubMed: 24076749
PubMed Central: 4078270
Affiliations:
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Le document en format XML
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Shaikh</name><affiliation wicri:level="1"><nlm:aff id="af8"><institution>PricewaterhouseCoopers LLP</institution>,<addr-line>McLean, Virginia</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author><author><name sortKey="Hesse, Bradford W" sort="Hesse, Bradford W" uniqKey="Hesse B" first="Bradford W" last="Hesse">Bradford W. Hesse</name><affiliation wicri:level="1"><nlm:aff id="af7"><institution>Behavioral Research Program, National Cancer Institute</institution>,<addr-line>Rockville, Maryland</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author><author><name sortKey="Cooper, Mary" sort="Cooper, Mary" uniqKey="Cooper M" first="Mary" last="Cooper">Mary Cooper</name><affiliation wicri:level="1"><nlm:aff id="af9"><institution>Science Applications International Corporation</institution>,<addr-line>McLean, Virginia</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author><author><name sortKey="Reeves, Dianne" sort="Reeves, Dianne" uniqKey="Reeves D" first="Dianne" last="Reeves">Dianne Reeves</name><affiliation wicri:level="1"><nlm:aff id="af10"><institution>National Cancer Institute</institution>,<addr-line>Rockville, Maryland</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author><author><name sortKey="Lanese, Bob" sort="Lanese, Bob" uniqKey="Lanese B" first="Bob" last="Lanese">Bob Lanese</name><affiliation wicri:level="1"><nlm:aff id="af11"><institution>Ireland Cancer Center, Case Western Reserve University</institution>,<addr-line>Cleveland, Ohio</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author><author><name sortKey="Helba, Cindy" sort="Helba, Cindy" uniqKey="Helba C" first="Cindy" last="Helba">Cindy Helba</name><affiliation wicri:level="1"><nlm:aff id="af12"><institution>Westat</institution>,<addr-line>Rockville, Maryland</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author><author><name sortKey="Miller, Suzanne M" sort="Miller, Suzanne M" uniqKey="Miller S" first="Suzanne M" last="Miller">Suzanne M. Miller</name><affiliation wicri:level="1"><nlm:aff id="af2"><institution>Fox Chase Cancer Center, Temple University Health</institution>,<addr-line>Philadelphia, Pennsylvania</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author><author><name sortKey="Ross, Eric A" sort="Ross, Eric A" uniqKey="Ross E" first="Eric A" last="Ross">Eric A. Ross</name><affiliation wicri:level="1"><nlm:aff id="af2"><institution>Fox Chase Cancer Center, Temple University Health</institution>,<addr-line>Philadelphia, Pennsylvania</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">PMC</idno><idno type="pmid">24076749</idno><idno type="pmc">4078270</idno><idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4078270</idno><idno type="RBID">PMC:4078270</idno><idno type="doi">10.1136/amiajnl-2013-001763</idno><date when="2013">2013</date><idno type="wicri:Area/Pmc/Corpus">000364</idno><idno type="wicri:Area/Pmc/Curation">000364</idno><idno type="wicri:Area/Pmc/Checkpoint">000267</idno><idno type="wicri:Area/Ncbi/Merge">000451</idno><idno type="wicri:Area/Ncbi/Curation">000451</idno><idno type="wicri:Area/Ncbi/Checkpoint">000451</idno><idno type="wicri:doubleKey">1067-5027:2013:Min H:sharing:behavioral:data</idno><idno type="wicri:Area/Main/Merge">000289</idno><idno type="wicri:Area/Main/Curation">000289</idno><idno type="wicri:Area/Main/Exploration">000289</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en" level="a" type="main">Sharing behavioral data through a grid infrastructure using data standards</title><author><name sortKey="Min, Hua" sort="Min, Hua" uniqKey="Min H" first="Hua" last="Min">Hua Min</name><affiliation wicri:level="1"><nlm:aff id="af1"><addr-line>Department of Health Administration and Policy</addr-line>,<institution>College of Health and Human Services, George Mason University</institution>,<addr-line>Fairfax, Virginia</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation><affiliation wicri:level="1"><nlm:aff id="af2"><institution>Fox Chase Cancer Center, Temple University Health</institution>,<addr-line>Philadelphia, Pennsylvania</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author><author><name sortKey="Ohira, Riki" sort="Ohira, Riki" uniqKey="Ohira R" first="Riki" last="Ohira">Riki Ohira</name><affiliation wicri:level="1"><nlm:aff id="af3"><institution>Booz Allen Hamilton</institution>,<addr-line>Rockville, Maryland</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author><author><name sortKey="Collins, Michael A" sort="Collins, Michael A" uniqKey="Collins M" first="Michael A" last="Collins">Michael A. Collins</name><affiliation wicri:level="1"><nlm:aff id="af2"><institution>Fox Chase Cancer Center, Temple University Health</institution>,<addr-line>Philadelphia, Pennsylvania</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author><author><name sortKey="Bondy, Jessica" sort="Bondy, Jessica" uniqKey="Bondy J" first="Jessica" last="Bondy">Jessica Bondy</name><affiliation wicri:level="1"><nlm:aff id="af4"><institution>University of Colorado Denver</institution>,<addr-line>Denver, Colorado</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author><author><name sortKey="Avis, Nancy E" sort="Avis, Nancy E" uniqKey="Avis N" first="Nancy E" last="Avis">Nancy E. Avis</name><affiliation wicri:level="1"><nlm:aff id="af5"><addr-line>Department of Social Sciences and Health Policy</addr-line>,<institution>Wake Forest University School of Medicine</institution>,<addr-line>Winston-Salem, North Carolina</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author><author><name sortKey="Tchuvatkina, Olga" sort="Tchuvatkina, Olga" uniqKey="Tchuvatkina O" first="Olga" last="Tchuvatkina">Olga Tchuvatkina</name><affiliation wicri:level="1"><nlm:aff id="af2"><institution>Fox Chase Cancer Center, Temple University Health</institution>,<addr-line>Philadelphia, Pennsylvania</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author><author><name sortKey="Courtney, Paul K" sort="Courtney, Paul K" uniqKey="Courtney P" first="Paul K" last="Courtney">Paul K. Courtney</name><affiliation wicri:level="1"><nlm:aff id="af6"><institution>Dana-Farber Cancer Institute</institution>,<addr-line>Boston, Massachusetts</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author><author><name sortKey="Moser, Richard P" sort="Moser, Richard P" uniqKey="Moser R" first="Richard P" last="Moser">Richard P. Moser</name><affiliation wicri:level="1"><nlm:aff id="af7"><institution>Behavioral Research Program, National Cancer Institute</institution>,<addr-line>Rockville, Maryland</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author><author><name sortKey="Shaikh, Abdul R" sort="Shaikh, Abdul R" uniqKey="Shaikh A" first="Abdul R" last="Shaikh">Abdul R. Shaikh</name><affiliation wicri:level="1"><nlm:aff id="af8"><institution>PricewaterhouseCoopers LLP</institution>,<addr-line>McLean, Virginia</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author><author><name sortKey="Hesse, Bradford W" sort="Hesse, Bradford W" uniqKey="Hesse B" first="Bradford W" last="Hesse">Bradford W. Hesse</name><affiliation wicri:level="1"><nlm:aff id="af7"><institution>Behavioral Research Program, National Cancer Institute</institution>,<addr-line>Rockville, Maryland</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author><author><name sortKey="Cooper, Mary" sort="Cooper, Mary" uniqKey="Cooper M" first="Mary" last="Cooper">Mary Cooper</name><affiliation wicri:level="1"><nlm:aff id="af9"><institution>Science Applications International Corporation</institution>,<addr-line>McLean, Virginia</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author><author><name sortKey="Reeves, Dianne" sort="Reeves, Dianne" uniqKey="Reeves D" first="Dianne" last="Reeves">Dianne Reeves</name><affiliation wicri:level="1"><nlm:aff id="af10"><institution>National Cancer Institute</institution>,<addr-line>Rockville, Maryland</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author><author><name sortKey="Lanese, Bob" sort="Lanese, Bob" uniqKey="Lanese B" first="Bob" last="Lanese">Bob Lanese</name><affiliation wicri:level="1"><nlm:aff id="af11"><institution>Ireland Cancer Center, Case Western Reserve University</institution>,<addr-line>Cleveland, Ohio</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author><author><name sortKey="Helba, Cindy" sort="Helba, Cindy" uniqKey="Helba C" first="Cindy" last="Helba">Cindy Helba</name><affiliation wicri:level="1"><nlm:aff id="af12"><institution>Westat</institution>,<addr-line>Rockville, Maryland</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author><author><name sortKey="Miller, Suzanne M" sort="Miller, Suzanne M" uniqKey="Miller S" first="Suzanne M" last="Miller">Suzanne M. Miller</name><affiliation wicri:level="1"><nlm:aff id="af2"><institution>Fox Chase Cancer Center, Temple University Health</institution>,<addr-line>Philadelphia, Pennsylvania</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author><author><name sortKey="Ross, Eric A" sort="Ross, Eric A" uniqKey="Ross E" first="Eric A" last="Ross">Eric A. Ross</name><affiliation wicri:level="1"><nlm:aff id="af2"><institution>Fox Chase Cancer Center, Temple University Health</institution>,<addr-line>Philadelphia, Pennsylvania</addr-line>,<country>USA</country></nlm:aff><country xml:lang="fr">États-Unis</country><wicri:regionArea># see nlm:aff country strict</wicri:regionArea></affiliation></author></analytic><series><title level="j">Journal of the American Medical Informatics Association : JAMIA</title><idno type="ISSN">1067-5027</idno><idno type="eISSN">1527-974X</idno><imprint><date when="2013">2013</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><sec><title>Objective</title><p>In an effort to standardize behavioral measures and their data representation, the present study develops a methodology for incorporating measures found in the National Cancer Institute's (NCI) grid-enabled measures (GEM) portal, a repository for behavioral and social measures, into the cancer data standards registry and repository (caDSR).</p></sec><sec><title>Methods</title><p>The methodology consists of four parts for curating GEM measures into the caDSR: (1) develop unified modeling language (UML) models for behavioral measures; (2) create common data elements (CDE) for UML components; (3) bind CDE with concepts from the NCI thesaurus; and (4) register CDE in the caDSR.</p></sec><sec><title>Results</title><p>UML models have been developed for four GEM measures, which have been registered in the caDSR as CDE. New behavioral concepts related to these measures have been created and incorporated into the NCI thesaurus. Best practices for representing measures using UML models have been utilized in the practice (eg, caDSR). One dataset based on a GEM-curated measure is available for use by other systems and users connected to the grid.</p></sec><sec><title>Conclusions</title><p>Behavioral and population science data can be standardized by using and extending current standards. A new branch of CDE for behavioral science was developed for the caDSR. It expands the caDSR domain coverage beyond the clinical and biological areas. In addition, missing terms and concepts specific to the behavioral measures addressed in this paper were added to the NCI thesaurus. A methodology was developed and refined for curation of behavioral and population science data.</p></sec></div></front></TEI><affiliations><list><country><li>États-Unis</li></country></list><tree><country name="États-Unis"><noRegion><name sortKey="Min, Hua" sort="Min, Hua" uniqKey="Min H" first="Hua" last="Min">Hua Min</name></noRegion><name sortKey="Avis, Nancy E" sort="Avis, Nancy E" uniqKey="Avis N" first="Nancy E" last="Avis">Nancy E. Avis</name><name sortKey="Bondy, Jessica" sort="Bondy, Jessica" uniqKey="Bondy J" first="Jessica" last="Bondy">Jessica Bondy</name><name sortKey="Collins, Michael A" sort="Collins, Michael A" uniqKey="Collins M" first="Michael A" last="Collins">Michael A. Collins</name><name sortKey="Cooper, Mary" sort="Cooper, Mary" uniqKey="Cooper M" first="Mary" last="Cooper">Mary Cooper</name><name sortKey="Courtney, Paul K" sort="Courtney, Paul K" uniqKey="Courtney P" first="Paul K" last="Courtney">Paul K. Courtney</name><name sortKey="Helba, Cindy" sort="Helba, Cindy" uniqKey="Helba C" first="Cindy" last="Helba">Cindy Helba</name><name sortKey="Hesse, Bradford W" sort="Hesse, Bradford W" uniqKey="Hesse B" first="Bradford W" last="Hesse">Bradford W. Hesse</name><name sortKey="Lanese, Bob" sort="Lanese, Bob" uniqKey="Lanese B" first="Bob" last="Lanese">Bob Lanese</name><name sortKey="Miller, Suzanne M" sort="Miller, Suzanne M" uniqKey="Miller S" first="Suzanne M" last="Miller">Suzanne M. Miller</name><name sortKey="Min, Hua" sort="Min, Hua" uniqKey="Min H" first="Hua" last="Min">Hua Min</name><name sortKey="Moser, Richard P" sort="Moser, Richard P" uniqKey="Moser R" first="Richard P" last="Moser">Richard P. Moser</name><name sortKey="Ohira, Riki" sort="Ohira, Riki" uniqKey="Ohira R" first="Riki" last="Ohira">Riki Ohira</name><name sortKey="Reeves, Dianne" sort="Reeves, Dianne" uniqKey="Reeves D" first="Dianne" last="Reeves">Dianne Reeves</name><name sortKey="Ross, Eric A" sort="Ross, Eric A" uniqKey="Ross E" first="Eric A" last="Ross">Eric A. Ross</name><name sortKey="Shaikh, Abdul R" sort="Shaikh, Abdul R" uniqKey="Shaikh A" first="Abdul R" last="Shaikh">Abdul R. Shaikh</name><name sortKey="Tchuvatkina, Olga" sort="Tchuvatkina, Olga" uniqKey="Tchuvatkina O" first="Olga" last="Tchuvatkina">Olga Tchuvatkina</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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